Category Archives: personal

Continuing to Waggle My Mouse

Getting the Waggle On

Development of the Waggle My Mouse application has been going well. I’ve over come a number of issues, I can now track the mouse pointer, and can capture the quick changes in the mouse pointers location. Two outstanding technical issues arise. These are:

  1. How do draw a highlighted shape over the mouse pointer?
  2. How do I know when the mouse has been waggled?

Detecting a Mouse Waggle

I’ve done some Windows programming before and I’ve a fairly good idea that I can draw a shape over the mouse pointer. The biggest unknown after that was trying to determine what a waggle is, and recognising when I saw one. I’ve a little test bed win32 application that I’ve been playing it. I’ve been using this application to complete my investigations on the practical ability I have to write a mouse waggle utility. I modified this test bed tool to record the mouse pointer locations, and the Delta-X; the difference in the position between the X coordinate of the mouse pointer now, and when it was last recorded. I managed to capture a bucket load of data describing what a mouse shake (or waggle) looks like. I imported this data into excel to let me visualise the waggle.

Graph of a Mouse Waggle

The shape of the waggle became really quite easy to see. The next question is “How do I write a bit of code which can detect that waggle?”. – Or at least that’s what I thought the question was.

Sharing the Waggle

I’ve a big fan of Justin Jackson with the Mega Maker podcast and Rob Walling and Mike Taber with the Startups for the Rest of Us podcast, and I was listening to them recently, when both shows made two really good points:

  1. “How will I let people know about my idea?”

    and

  2. “How do I know what people think about my idea?”

That got me thinking.. “I really need to Share my Waggle”. So I bought wagglemymouse.com. Feel free to check it out, there is nothing there right now. My next job is to create some content which concisely describes my idea and why it is a good thing, and encourages people to sign up to an email list, or follow me on twitter for updates. That’s going to be my focus until the next Waggle my Mouse blog post.

Flying to Protest

Dublin Airport before the  sun rises

Dublin Airport before the sun rises


I’m typing this on a London bound flight. I’ve taken countless flights, but I’ve never done this before. I’m a little nervous, and a bit excited. 

Over the last couple of months I’ve met and become friends with a bunch of new people, a ber eclectic group, from models to town planners. We’ve become friends on line, and I’m going to meet most of them face to face for the first time.

I’m going to apologise now, because this is going to get a little political. If you’ve seen my Twitter or particularly my Facebook posts of late, then this will not come as a surprise.

While I’m British, I live in Ireland and in the month before the Brexit vote I was sure that the UK would vote to remain in the EU. Then I visited the UK and I was exposed to full force of the U.K. Press and my impression changed completely.

I was stunned at the arguments being used in the campaign to leave, they didn’t make any sense and in part didn’t reflect the work that the EU actually does. The suggestion that foreigners were taking jobs was the pivot point for me, the retorhric being used and the approach to the argument were divisive and ugly. The press from the BBC to national newspapers lead with similar, inaccurate stories. I know the UK had a free press, but they were publishing and republishing inaccurate information as fact, and dimissing facts dismissed as opinion.

Friends in Ireland said “isn’t there a referendum commission which oversees this?”. Unfortunately no, the whole idea of running regular referendums is new in the UK, and there is no such public body to oversee then.

This right wing campaign had all the trappings of something from the 1930s. The country is changing, and becoming something I do not recognise. As read the articles in the UK papers, the poem by Pastor Martin Niemöller came to mind:

First they came for the Socialists, and I did not speak out—

Because I was not a Socialist.

Then they came for the Trade Unionists, and I did not speak out—

Because I was not a Trade Unionist.

Then they came for the Jews, and I did not speak out—

Because I was not a Jew.

Then they came for me—and there was no one left to speak for me.

As the Wikipedia article explains, it impart reflects the regret that so many had at the time for not standing up to a political view they did not agree with.

And so, I find myself on a flight. 

Waggle my MegaMaker

Wow it is hard work to fit everything in. I’ve been working hard on progressing and investigating the two ideas I proposed last week;

  • Waggle my mouse : Find your mouse pointer on Windows desktops with very high resolution monitors, or multiple displays.
  • Social Media authorization for groups : Supporting the Brexit campaigns I’ve seen on Facebook who are struggling to all members of the group to access other resources, such as wordpress blogs etc.

Waggle My Mouse

This looked the most technically straight forward of the two ideas, and one with probably the easiest route to market. So this week I set up to investigate what APIs where available on Windows to track the mouse cursor. Now, I’ve done some win32 programming in the past so I thought “This can’t be too hard… right?”. Alas, as anyone who’s done win32 and ‘c’ programming knows, there are always twists in the tale. So I spend a number of hours chasing through the MSDN win32 documentation trying to discover how you track the mouse. In brief, it’s really easy to track the mouse if the cursor is moving over your application’s window, but if it isn’t – then it’s a bit more tricky. I discovered the rawinput APIs which are pretty cool. They give the raw input from the mouse device driver. I thought this would solve the problem, and it does and then it doesn’t.

RAWINPUT on Windows

While the rawinput API does give me information about the mouse, even when it is not over my application, it doesn’t actually tell me where the mouse is. The API gives the delta between the mouse’s last location, and its current location. This is great or detecting a “waggle” – as this is exactly what I would need to do, but it doesn’t tell me where on the screen the mouse is, or on multiple displays – which display. I’ve some more work todo.

WaggleMyMouse.com

Well on the basis on my hunch for implementing the idea I went out and bought the domain name anyway. I had a number of domains up for renewal and though, heck, I’ll get this one while I’m at it. I plan to setup a simple WordPress page, with a pre-bought template. I known that I can get a template that will hook up with mailchimp and provide me with a quick sign up mailing list. Now I’ve just got to go searching for that.

Before I do, I want to go searching for this silly Win32 API – talk about an itch I need to scratch, this technical issue about he mouse location is bugging me.

Social Media authorization for groups

I did some API investigation on this one. The core idea is that members of a specific Facebook group would be able to sign in to say, WordPress, and then would be provided access to the editor based on their group membership within Facebook. That way user access control is done by the Facebook group admins. Now, after checking I can see that all the APIs are there to do this, and it seems deceptively straight forward. However given all the trouble with the win32 idea, I’m wondering if it really is.

The goal of this plugin / tool is to support the existing Facebook groups. So I’ve a meeting this Wednesday with a group. It also happens to a brexit group, one I’d like to help anyway – perhaps I would be able to kill two birds with one stone? – I’ll have to wait and see…

Keep moving forward

Of the two ideas Waggle My Mouse looks like the idea with the least unknowns, both technically and route to market. So that’s the one I will follow for now.

I’m going to see how I can help the brexit group more generally, if anything comes out of that conversation which could be a candidate for my own MegaMaker challenge, then that’s a bonus.

Time challenge

The originally challenge from Justin was to launch something every week. That’s tough, especially while your holding down a day job – and I’m contracting at the moment, and have a young family to hangout with. But even doing the API investigations has engendered that love of technology and software development I have, and I’ve really enjoyed it.

Justin mentioned finding something that you enjoy doing – and this has been it.

And all the rest

In addition to the work I’ve done on these projects, I’ve also taken part in an AirRun – it’s a 5k race with adult style bouncy castle obsticals to cross. It was a huge amount of fun, and if you get the chance you should totally do it. It also reminded me that I need to get back and exercise. I’d eased off in the run up to my holidays, but I really do need to get back at it.

Inspiration and Exasperation

This has been a really busy week. Last week I was on holiday, as you can tell
from my previous blog posts, I’m a Brit, who firmly believes in the EU, and so
was pretty distraught at the results of the referendum. During the vacation I
got involved in a number of Facebook groups who are attempting to help ensure
that the UK reconsiders leaving the EU. Its a long hard struggle, but I think,
if we can pull it off it will be the national good.

 

So this week has been spent trying to help some of the Facebook groups out. I’ve
written blog posts and offered my skill set to them. With the exception of a few
committed individuals, there appears to be a lot of good will, but a lack of
organisation. Coming from the professional world you can see this causing some friction between people. I guess that’s to be expected in the nature of these movements. It has been a learning experience for me.

 

In the midst of all of this, I returned to the day job. During my commute I
often listen to a podcast called Start Ups for the Rest of
Us
. It’s a fantastically interesting
show and it tries to explain who two guys went from working full time as
employees to having their own companies and products. In “Launching 100
projects in One
Year

Mike, one of the hosts, interviews Justin Jackson. Justin is in the middle of a
year long journey to discover what type of product and company he would like to
run. To do this he us experimenting with 100 startups during the course of a
year, that 2 or more releases every week! Justin’s called this project
“MegaMaker”. It was a really inspiring show, since then I headed over to his
podcast and started listening to the start of his journey, 6 months ago. I’m
hooked.

 

This has got me wondering about what I can do, what could I commit to delivering
in a weeks time.

 

Facebook Discoveries

Prior to all of my anti-brexitering engagement, and social media based protest
groups, I did not know about some of the features that Facebook has. A number
of the groups I’ve joined have a “files” section, where additional content is
stored and shared. My first thought was… “wait… Facebook supports files?!”.
Well yes, it does. It is a bit kludgy in user experience terms, but there are
files associated with groups. After learning how this worked, I met a lot of
people inside these groups who were confused when others started mentioning the
“files section”. Part of the problem is that inside the Facebook application,
which I’m guessing is how the majority of its users now access it, a Group’s
files section is hidden behind the group’s “information” button. You wouldn’t
find it, if you hadn’t been told that it existed.

 

As these groups start to organise themselves they start to look to move away
from just Facebook, and back out to more traditional channels, like Twitter,
blog postings (medium, wordpress), and from there to standard stand alone
websites. There are teething trouble during this transition as Facebook’s groups
don’t easily allow sharing of content, or integration with other products and
services. Here are some of the issues that I’ve encountered:

  • Pinning posts which shrink
    To try and address common issues, like letting people know where the files
    section is, or providing them with links to important documents, or
    important posts, we’ve tried pinning posts to the top of the group. They pin
    to their location ok, but the posts are always truncated, and have to be
    expanded to be read, and not everyone does that. It would be munch better if
    pinned posts, could be pinned open.

  • Group Authentication
    In a number of the groups we would like to securely share access to allow
    members of groups to access files on google docs, or post blog updates to
    Wordpress or Medium sites. Bu there is no way to do this. This then requires
    folks within the groups to try to create manual processes for creating and
    maintaining these external sites and services. This takes time and puts
    pressure on just one or two individuals in groups with thousands of members.
    It would be so much better if you could log into the external services, with
    your Facebook account, and because your a member of a predetermined Facebook
    group you get access to additional services. So as a member of one of the
    groups, I could log into, say WordPress and post new blog posts to my
    group’s wordpress site. But I’ve not found anything that would allow me to
    do that.

 

MegaMaker Idea: Group Blog Posting from Facebook to Medium / WordPress

This all got me thinking, is there something I can do to help here. What about a
web service that would log into Facebook, check a group and its files, find all
the files with names beginning with “blogpost_” and publish these to a Medium
or WordPress site? – could I deliver that in a week?

 

Waggling my Mouse in Frustration

I’ve a multi monitor, and laptop setup at work. In total I’ve three screens. It
is very handy, but have you ever lost your mouse pointer across three monitors?
– Damn it, it is annoying. The first thing everyone in the office does is to
“waggle” (shake) their mouse. The human eye spots movement quicker than still
images, so waggling the mouse pointer to spot movement is an undderstanable
reaction. But it seldom helps. I’ve made my mouse bigger, and added mouse trails
etc, but it doesn’t feel like it is helping.

 

MegaMaker Idea: Waggle My Mouse

I got the chance to try out Mac, and I lost my mouse pointer on that machine
too. However when I shook / waggled the mouse pointer… there it was! The
pointer grew in size as I continued to waggle the mouse. Now if only similar
functionality existed on Windows… Could waggling my mouse me another MegaMaker
idea?

 

The weekly Email update

I’ve really enjoyed the weekly update format used by Justin on his MegaMaker
podcast. I’m also a long time follower of a Twitter user called @Documentally aka Christian Pain. Christian writes a weekly newsletter in which he details what
he’s been up to each week. Now, he’s a much more varied life than me, with a job
that often takes him around the world. Not only do I enjoy his writing, but I
can see how after a few weeks of publishing his weekly thoughts he’s also using
them almost as a form of motivation.

 

Next Week

So, what should I work on for next week. I’m thinking I compare these two ideas
and select one to move forward with. I love both of them. In fact tonight I
spend a long while researching windows APIs for mice, and also looking at
Facebook APIs. I’ve also promise to help out with some of the 48% group.
Personally I’ve got some work to do on just tidying up the various web sites I
currently own, I’ve a growing bill from GoDaddy.. every time I get an idea I
purchase a domain… I don’t normally use it, but I have it…

 

Anyway,.. for now.. good night all.

EU Flag

What has the EU ever done for us?

The EU does a lot of work to help drive Science, technology and innovation across Europe, and I think in the mist of the Brexit debate this can get over looked. My day job involves  working with these EU programmes, so I thought I’d share what I’ve been involved in, and have worked on.

European Research Programmes

There has been so much talk recently about how the EU imposes restrictions on business, and creates silly rules. Now, not every organisation is perfect, but national politics aside the EU can and does do some good work.

The EU works hard to support the creation new jobs via new technologies and the associated research. To do this the  EU is constantly looking at how we in Europe compete against other major counties, and it tries hard to ensure success for everyone living in the EU. This, as you can imagine is no easy task. Europe is big and has many millions of people, all with different skills dotted about many different countries.

I want to tell you about the European research programs I’ve been involved in and how, they have in the past created thousands of jobs across Europe, including the UK. The very same research is touching on the cutting edge of technology today and has the potential to create an amazing future for us all. Before I cover the European research program it is important to go back in time and to a different continent, North America.

Research Grants and The Birth of the Internet

Back in the 1980s the European Commission studied how each member states sponsored research and innovation policies compared to other counties from outside Europe. Specifically they looked at the DARPA (Defence Advanced Research Projects Agency) research grants issued by the US. Although these grants were, and still are, focused on defence research, Europe recognised the huge impact they had on the US economy. To give you an example of the impact DARPA grants have, I should point out that the entire internet was born from a DARPA grant. The initial research lead to the birth of the ARPANET, and eventually to the internet we know today. More recently the self driving cars we see from Google; that core technology is also from DARPA.

The Birth of European Research Projects

The DARPA grants are big, much bigger than any of the support packages that any individual state could provide. Europe decided it needed something on a similar scale, that would maximise the research value of everyone across Europe. From this was born the “Framework Projects”. These projects started in the 1980, and continue to evolve. The latest iteration of the Framework Project is called Horizon 2020, or H2020 for short.

The Framework projects have had some huge success. The “3G” technology that powers almost everyone’s mobile phone was designed and developed in Europe, with the support for European Research Grants.

Beyond Defence Research

The DARPA research grants, are by their very nature focused on defence. In contrast the EU Framework Projects and H2020 are not bound to defence. They include topics as diverse as archaeology and healthcare. The H2020 website contains a collection of “project stories” which highlight the diverse nature of the research grants and what they have achieved. This includes stories about a project designed to spot pancreatic cancer early which would dramatically improve survival rates, to a project about preserving ancient documents with digital copies.

And me?

Well as someone who works in software, my focus in H2020 research has been on extending the “cloud” from data centres, right out to the phone in your hand – turning that to into a cloud machine. I’ve also been working on new ways in which computer networks can operate (SDN/NVF) and how the software that manages that works. This all sounds quite geeky, and I apologise – it is. But I hope that some of this research will help contribute to the next wave of mobile and cloud technology, some of which could end up being in that little “5G” logo that will appear on your mobile device some time in the future.

H2020 Research Grants

I should add, that the research grants are available to all companies in Europe. The EC holds open days to educate people on how the programme works. Each year the EC announces a set of research topics, these are broad problem statements, or “calls”. Groups consisting of universities, SMEs and large industrial organisations from 3 or more member states get together in a consortium to submit a detailed problem statement and proposed solution which would address the problem outlined in the “call”. This is a competitive process and the EC uses a bunch of external experts to review the proposals it receives. The top solutions are then selected for funding.

The process of writing a good proposal can be hard, but as a researcher even this can be very rewarding. Imagine getting the time to work with some of the smartest people in Europe in some of the biggest challenges in your field. Thinking of creative ways to address these issues with them, brainstorming and then working hard to refine the solution. It really can be a lot of fun, and when done well even the act of writing the proposal can open up a world of new ideas.

 

How not to deliver a wedding speech

11 years ago today, I woke with a hangover. As the room came into focus I looked about. Flash backs from the day before came before my mind, and the largest, biggest smile spread across my face. The booming headache was replaced with a serenity and happiness for which I felt immensely blessed.

I glanced at the table in the hotel room, it didn’t look a sturdy as the one upon which John Page, a family friend had danced upon the night before.

On top of the table in the hotel room sat a scrap of paper, it was the guide I’d given Robert Macdermott; a list of every memorable but wholly embarrassing event we had shared together at university. I’d requested that he would not use these, however in the speech he gave to the entire room of friends and family he hit every single one. The embarrassment of that event pinged lightly off my receding hangover.

I recall sitting at the top table the night before and looking out at a sea of friends and family. Seeing my Grand Mother’s smile as she sat at a table with my cousins, Uncle and Aunt.

I recall my father, still struggling with the effects of his stroke, standing to give a speech. My father had told me years before he took ill about what an amazing public speaker my uncle was. To my great surprise after my father spoke, my uncle stood and gave a truly inspiring, and humorous and captivating speech on the topic of “love”.

As I lay there on the bed the morning after the night before; I think some of my tiredness can be attributed, not to an excess of bacchanal, but the more mundane. My nerves had gotten the better of me and I didn’t really sleep the night before.

In the early hours of the morning I gave up trying to sleep and found myself in the hotel pool with David Bullock, and Rob.

But those nerves where nothing compared to what I experienced in the Church. Waiting at the alter with David, Rob, Stephen Melia and Stephen Airey, they kicked in big time.

Rob and David started trying to relieve my nerves my coughing and spluttering under their breath “don’t do it”. I don’t think that really helped.

Then, I saw my sister, Elaine in her bride’s maid dress, following that Orla, Ruth and Dawn, and eventually Emma and her father Aubrey. I got the biggest smile from Emma and my nerves relaxed. Well, they did until I shook hands with Aubrey, and his grip left me in no uncertain terms about the importance of the day. Little did I know that I would be tested in my new role as son-in-law quite so soon. I discovered that the walk to cut the wedding cake could pose the first really important decision of my marriage.

The wedding cake, a large chocolate cake had been transported with great care by a team of friends, including Elaine MacDermott and David Bullock. They had balanced that cake on their knees as, I in a little VM Polo had got lost on the back streets of Dublin – where every road, no matter which one you take, appears to be sign posted for the airport. While the cake had made it safe and sound to the Hotel, my travel from the top table to the cake stand would not prove so easy.

Emma had told me that the one thing she was most worried about, was tripping up and falling on our wedding day.

Emma, being closest to the cake, stood first and turned to walk toward it, and I followed. It was then that I saw her fall; the train of her dress extended in front of me as she fell away from me. In my mind, time slowed and a set of possibilities where quickly evaluated:
1)    Lunge for Emma and save her from the floor. In doing so I would need to step on the train of her dress, possibly ripping it.
2)    Let the dress survive, and let Emma fall to the ground, then pick her up afterward.

I the second I had to make this, I concluded that Emma would like to see out the rest of the day in her wedding dress more, than not falling to the ground. So with I stood, helpless as I watched Emma’s worst fear unfold in front of me.

I quickly helped her to her feet and hugged my bride. She started to tear up. With her back toward the sea of family and friends, she couldn’t see my hands. I looked over her shoulder at the first table of friends and with my hands behind Emma’s back I made the universal sign for applause. The room responded with gusto and Emma’s trip was met with a great cheer and much clapping. 

While Emma’s fear had actually produced a great big cheer. The same however could not be said for my speech.

Now I have to admit, my preparation for the speech on the big day wasn’t great. So when it occurred to me that I needed to give a speech I quickly borrowed a pen and a napkin and started scribing. The nerves did indeed return. In the best style of all groomsmen my new brother -in-law Stephen Melia did his best to ensure that my nerves were relaxed. “Just remember” he said and then referred to Emma’s tumble “you’ve already got Emma on her back”.

So I stood, and thanked everyone, we raised a toast to all the absent friends who were no longer with us, before I turned to address my new wife.

“Ever since seeing Emma walk down the aisle” I said, “I’ve been looking forward to getter her on her back, but never thought it would happen so soon.”

As I finished the sentence the entire room took a collective intake in breath, and silence befell.

Balls.

Then a cackle of laughter appeared, first from somewhere on the top table and then it appeared to spread across the room.

After the speeches concluded I caught a few words with Scott Lewis, he told me “Chris, when you delivered that line, I was confused, I thought ‘that’s funny but I don’t know if I should laugh or not’”. Scott continued “But then I looked up, and I saw your new father in law laughing hard and I understood it was ok”.

11 years later, I’d happily acknowledge that a little extra preparation on my speech would definitely have helped. But I wouldn’t want to change a single thing about that day. It is a day filled with some of the best memories, and warmest sensations of friendship and love. It is still one of the most amazing days of my life and was the start of a huge adventure with the most amazing women in the world.

Giving a little back

From the initial diagnosis of Matthew’s infantile spasms right through to providing support for his eye rolls post discharge the guys at Temple Street Children’s Hospital have been amazing. The time has come were we can now give a little something back, and perhaps help other children and their families that are suffering from neurological conditions.

It’s happened at least three times since discharge, but Mattie had had the odd eye role. At first we thought he was just messing with us, or perhaps we’d imagined it, and actually he was just playing. However I caught the second one on camera.

We were reading the Gruffalo book, and Mattie being a huge fan was loving every minute of it. His speech had come on fantastically and he was acting all super cute, pointing out the characters and what they were up to. I decided to a video to send to friends and relatives and it was just as I was recording that he had an eye roll. Thankfully I had caught it on camera. I was able to re-watch it with Emma and make sure that it wasn’t me imagining it.

Emma got in touch with the neurology department at temple street, and even though we were discharged they reviewed our footage and got back to us. They diagnosed these new eye rolls as a “benign tonic upgaze” which happens with all children on occasion. So nothing to worry about, although if they increase in frequency, intensity or duration we are to give them a call. It was great to get that support even though Mattie wasn’t actually a patient.

Giving Something Back

We thought it would be great to give something back to the hospital and in particular the neurology department. So Emma has signed up for one of  Ireland’s largest army assault style runs, it’s called Hell and Back. – The clue really is in the name. It would be great if you could consider supporting Emma and Temple Street by sponsoring her via this link here: http://www.mycharity.ie/event/emma_woodss_event/

Alternatively if you just want to watch the obstacles Emma is going to have to under take you can check out the event videos here.

 

TextQuick and the Power of Software

At first I wasn’t too sure what to make of it. An email explaining that a mobile application I’d written had changed someone’s life. But it turned out to be the single best piece of user feedback I’ve ever had and probably the best email I’ve ever received. It all started with an ultimatum from my wife, and a desire to create an app which would “scratch my own itch”….

Or continue to read the rest of this post over at Medium

 

Mattie looking out of the Plane Window, doddie in mouth

World at his feet

I should have updated this blog sooner. It’s been over a month since Mattie was back at Hospital. In late April he returned for what was his final check-up with the Neurology team at Temple Street Hospital.

This check-up had been planned for a while. It’s not often that anyone actually looks forward to a trip to Hospital, but we were. We hadn’t seen any spasms, and developmentally Mattie has come on leaps and bounds.

Both Mattie and his big brother, Ben go to the same crèche. Some of the older boys in Ben’s class will horse around, with a little light pushing and shoving, nothing unusual just typical boy’s behaviour. On occasion it would get a little too much for Ben and he’d start crying. I dropped the two boys off one morning and one of the older boys from Ben’s class walked up to Mattie and pushed him. Rather than getting upset, as his big brother might, Mattie laughed, and then pushed back. It surprised the older boy who took a couple of steps back to recover, but before he could Mattie was toddling up to him to play again, and another push was delivered. Meanwhile Ben looked on in bewilderment. Watching the two brothers play, it would be easy on occasion to assume that Mattie was the older, and Ben the younger.

Ben and Mattie preparing to "Clothes-Line" daddy.. ok, they are actually holding hands

Ben and Mattie preparing to “Clothes-Line” daddy.. ok, they are actually holding hands

Apart from impressing his older brother, Mattie’s speech and coordination have all come along in leaps and bounds. At 2 and a half years he’s starting to string words together to form sentences, just tonight all he wanted to do was “Play Ben”. In fact the relationship between the two brothers has also grown stronger, and they play off each other, Mattie copying Ben, and vice-versa. If Mattie and Ben started coordinating their antics together, and working together more closely then Emma and I would be completely screwed!

Having seen such fantastic progress we were really looking forward to the check-up. Nervous, sure, but quietly positive that his check-up would be good and he’d get the all clear.

Perhaps I have a pessimistic tendency; but it is when everything seems to be going well that I notice things.

“Did I just see that?” – I said it out loud before even thinking about it.
“Yes” said Emma, “it could be just be him messing?” she suggested.
It was Sunday we were sitting at dinner when Mattie suddenly leaned forward, his chest against the table and his eyes rolled back into his head. Less than a second later he was back to normal, and happily eating his meal. – Or at least as happy as a “terrible two” year old can be.

It was worrying, but we’ve not seen it since, and repetition is the key in I.S.

On the day of the check-up Emma took him in to hospital. Emma managed to beat the Dublin traffic and arrived at the hospital before 9 am. However there was a long wait and Mattie, as any two year old would, got a little bored and fed up. However at just after 11:30 am I got a phone call from Emma.

“He’s discharged!” said Emma, “The next time they need to see him, is when he’s 6 years old!”.

They’d given Mattie a battery of developmental progress tests, all of which were positive.

“Your very fortunate. He appears to be one of the lucky ones” our consultant had said.

We are so very lucky indeed. That night we had a “treat tea”; with cake and treats for the two boys. Then once the two boys were safely tucked up in bed Emma and I celebrated with a bottle of sparkling wine.

Mattie has to return to hospital when he’s 6 years old for an eye test. This eye test will tell us if his vision has been impaired by the Sabril he took, we won’t know until then, and ultimately now there is little point in worrying about it. We’re just delighted to have been so very lucky indeed.

From a future that could so very much have been stolen from him, I now feel like he has the world at his feet, and everything to play for. Good luck son, now go get’em – your more than earnt your chance…

Mattie looking out of the Plane Window, doddie in mouth

Mattie looking out of the Plane Window, doddie in mouth